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Tomorrow never comes.

Woke at 5.30am, reeking of fake tan and feeling wide-awake. A few hours later, I’m sitting up in bed, half-watching the first season of ER and trying to pick dried wax out of my eyebrows and off my face. S is taking me for a meal tonight at our favourite Indian restaurant, so I’m trying to remove all ten tonnes of body hair before he sees me; having polycystic ovaries is a nightmare sometimes. I’ve been managing the symptoms quite well for the past few years – losing five dress sizes almost overnight in hospital helped – but it’s slowly getting worse again.

My diet is failing miserably. I lost 6lbs, then started binging again. Not badly; just enough to halt any progress in its tracks. I’ve been avoiding the Slim-Fast tins in favour of bowls of cereal and toast, convincing myself I’ll get back on track tomorrow.

It’s never tomorrow. I’d do well to remember that.

After the stress of yesterday, I slept like a baby last night. Drifted off around 9pm and slept right through. I’m not even sure I can remember dreaming – which is incredibly rare – and when I woke, I didn’t feel the usual urge to snuggle under the covers and put off beginning the day. Rolled a joint, made a coffee, checked my emails and played some Boggle, all before 7am. Considering I’d been getting up around 3 in the afternoon and going to bed when the sun rose… I think I’m doing well. There’s no doubt it has to be down to the Lyrica; nothing else has changed.

When we bumped into S yesterday, my mother chatted to him about how Lyrica’s worked for me:

“It’s a miracle, isn’t it?”

S gave me a hug and looked me up and down:

“It’s great, it’s fantastic seeing her so bouncy and happy again”

 
11 Comments

Posted by on May 30, 2012 in Every day life

 

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“They don’t know what’s going on inside your head — the mind-numbing cocktail of anger and sadness and guilt”

I almost lost it today.

Stupidly, I decided not to take my medication this morning. I was in a rush to get to my ultrasound appointment, and planned to take it when I got home. A few hours don’t tend to make much difference usually. However, this time I couldn’t control certain emotions and fears, and I really didn’t like it. Although I undoubtedly have BPD, most of the time it’s controlled by medication; I still panic, but can rationalise it if somebody doesn’t contact me (usually) and I’m not so prone to running away from stressful situations. I’ve been proud of the progress I’ve made in keeping the irrational fear behind a wall in my head.

Today though… I don’t know if it’s the heat, or having to get up early, or just sheer chance, but I freaked out. I got ready fine, put my makeup on, straightened my hair, put a dress on – signs I’m doing okay – but as soon as I got in the taxi, anxiety started building.

Paranoia. Panic attack. Psychosis. I don’t know what you’d call it. I become convinced everyone is staring at me and judging me unkindly; the logical side of me knows it’s impossible for a whole room of people to all hate me on sight, but logic means little when everything seems to be exploding and falling apart.

In the hospital waiting room, I decided a well-to-do woman sitting opposite me was staring at my face. Perhaps my hair or piercings. Maybe my choice of clothing; it all runs together. I started to panic and babbled at my mother about how much I hate hospitals, about the shabby-looking equipment and sullen staff. Anything to distract myself from the posh woman’s supposed glare. Looking back, I don’t even know if she was really looking at me. I could have made the whole thing up.

The building panic wasn’t helped by an incredibly rude sonographer. As paranoid as I was feeling, even I can’t pretend that he didn’t say a single word to me; wouldn’t even make eye contact. How difficult is it to say hello? I lay on the narrow bed while he totally ignored me, and I strained to make out the images on the ultrasound. I think I could make out the tendon; although what’s normal isn’t exactly something I can recognise.

I don’t even know where the results are going. I did ask – since I’m under both the care of my GP and Dr. B for the same issue – but I can’t remember the answer for the life of me. My head was so muddled at this point that I just wanted to get out, have a cigarette and cry.

I couldn’t go home and calm down though. My mother came with me to the appointment so we could shop in Tesco afterwards; so I had at least two more hours of panic to deal with. She spends forever looking at packages and going back and forth, and it’s not rare for me to kick off in the shop, but I’ve been doing well at controlling the rage recently. I just grit my teeth and force myself to get on with it.

In Tesco, I did well until the morning rush started. Suddenly the whole place was filled with hassled parents and middle-aged men fighting over barbeques, shoving their trolleys into the backs of my legs and blocking whole aisles with armfuls of children; all running around and screaming.

I quickly lost my mother somewhere – again, a regular occurence – and became panicked about not being able to carry what I’d already bought. Worried I’d never find her. I decided to distract myself by looking at contract mobiles (I’m considering getting a HTC Desire), and soon started thinking about the huge elephant which constantly stomps around our house; my financial situation.

In short, although I’m 27 years old, my benefits still get paid into my mother’s bank account. Why? I can only believe she’s using it to control me. She’s never allowed me to take control of my own money, although I’ve begged her many times.

When I finally found her in the vegetable aisle, I asked her if she’s going to “sort my money out”. I’ve been asking for over a decade, and got the same answer as usual: “Soon. Just let me get some stuff sorted first”.

An hour’s worth of panic and worry flew up into my mouth, and I started stammering at her. My throat tightened up and started to hurt. I wanted to cry. Scream. Punch somebody. I had to walk away feigning interest in the make-up section before I sat myself down on the floor and refused to budge; it wouldn’t be the first time. I wanted to run away and hide from all the strangers staring at me and judging my faults.

I’ve had two panic attacks recently; I don’t like to think it could be the start of something.

Bizarrely, I was saved from full-blown meltdown by bumping into S outside Tesco. Leaving to get a taxi home coincided with his lunch break at the hospital, and I couldn’t have felt more relieved. I calmed down immediately.

He’s like my own personal diazepam.

 
34 Comments

Posted by on May 29, 2012 in Every day life

 

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Facebook

It’s finally cooled down a little. The breeze from the sea has picked up, and I’m no longer wilting. I don’t know if I can take much more of this heat; I have an appointment to get my ankle scanned at the hospital tomorrow, and the idea of another hot, sweaty day – especially if I have to sit for a while in the tiny, cramped waiting room – is almost unbearable. Usually I’d meet S for a coffee in his break, but this appointment’s at 9am; so it’s unlikely we’ll see each other.

After some encouragement, I’ve finally set up a Facebook account/page for Halfway Between the Gutter. Over the last few weeks I’ve had a lot of visitors from Facebook; others have linked to my posts, I assume. I’m thinking maybe it’ll be a way to chat with other bloggers without having to sacrifice being anonymous.

My personal account

“Like” blog page

You can also like the blog page with the widget on the right hand side.

I’ve also had a photograph featured on Broken Light Collective; a community of photographers living with mental illness.

 
15 Comments

Posted by on May 28, 2012 in Every day life

 

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I said “see, too beautiful to let you sleep”

“It’s vital to remember who you really are. It’s very important. It isn’t a good idea to rely on other people or things to do it for you, you see. They always get it wrong.”
From Sourcery by Terry Pratchett

According to BBC weather, it’s 21° C and cloudy outside. Sitting in my bedroom with my window flung wide open, sweating like a pig and hating the sun… I beg to differ. I went outside earlier for a cigarette, and after a couple of minutes I could already feel my shoulders and face burning in the heat. I know a lot of my readers are from the USA, and I don’t know if news of the UK’s weather has reached that far but… it’s hot. Very hot. Yesterday was showing 30° outside, and it’s much the same today apart from a breeze coming off the coast.

Don’t get me wrong; I love summer. I love the green trees and being able to wear sandals. I love how the sun brings out my freckles and gives my normally grey face some colour. I don’t tan – natural gingers just burn, and burn badly – but the sun clears my skin up and makes me look healthy; something which doesn’t happen often.

Of course, sunshine also helps with pain; a lot. I love the first warm day of the year, knowing my muscles and joints will calm down for a while and give me some respite. However there’s such a thing as too warm, and this is it. Lyrica and Celebrex don’t seem able to cope with the neck muscle spasms which too much heat brings; last night I was in agony, moody and sweaty and trying to move my head to the side with little success. My head pounded, and my jaw muscles ached every time I opened my mouth. This is the bad side of summer.

So, I’m holed up in my bedroom, drinking cold coffee and wasting time on the internet. My brain feels like it’s melted; fibro-fog ahoy.

I feel guilty. I’ve been invited to a going-away party for somebody I know online, through a local forum. We were supposed to be meeting at 1pm outside an ice-cream parlour in town, but as much as I’d like to, the combination of unexpected pain and fatigue (and general anxiety) have put paid to any plans. I’m too nervous. Too shy. Too self-aware of my weight and looks. Too hot. Too achey.

I could have admitted to that, but I lied. As I always do in these situations. I don’t know why I can’t just admit that I’m not up to socialising; it’s hardly the biggest crime in the world. I just feel ashamed, I suppose. I don’t want to seem weak. I don’t want to be the always-sickly one who never comes out because I’m constantly unwell. I just want to be normal sometimes, and refuse for normal reasons.

I feel so uncomfortable and restless today. Nothing can hold my attention. Sleep is tempting, but I don’t want to ruin the almost-normal sleeping pattern I’ve created since starting Lyrica. I have the first three seasons of ER to watch, but I don’t want to stare at the TV screen. I don’t want to read. I’m happy, but just feeling physically drained by the heat.

As always, the weekend was glorious. I don’t usually write much about my weekends with S; regular readers know we spend a lot of time doing the same things – playing computer games, cooking, reading together – and I don’t want to bore anybody with my relationship. However, this weekend was different. Firstly, I felt something I’ve never felt before. I don’t know what to call it – it’s not love, because I already feel that for S – and I don’t even know how to describe it.

We were lying together on his bed, naked and chatting about little things. His arm was draped over my waist, and our heads were touching, our faces almost totally squashed into each other. We do this a lot, usually after sex; S has never been one for just turning over and falling asleep or getting up to do something else. After sex, he holds me. Every single time. He cuddles me close and we talk. It’s fantastic; something I’ve never had before, and something I was convinced didn’t actually happen outside of Hollywood.

It was like a welling up in my chest. An explosion deep inside me, somewhere I never knew existed. As S’s hand stroked my back, something in me threw out this emotion, daring me to feel it. For the first time in my life, I let the emotion in. I let myself feel something otherwordly for somebody else. I refused to doubt it; and finally spoke my feelings out loud after months of keeping my mouth shut for fear of rejection.

“This may be soft as hell, but you’re the one person I can see spending the rest of my life with. Who I’d want to spend the rest of my life with”.

S settled his head on my shoulder, and I could feel his smile against my skin as he spoke to me:

“You’ll just have to wait ’til I ask you formally, then”.

 
43 Comments

Posted by on May 28, 2012 in Every day life

 

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A letter from Stephen Fry, and Pinterest

I finally managed to get a Pinterest account last night, thanks to another blogger; about time too! I’ve been trying to join for ages but it’s never accepted invitations.

I have no idea what I’m doing; I just know it’s addictive. I can’t stop clicking. Damn my need to join in.

I’m waiting to go to town with my mother. Thursday is shopping day (also the day my benefits go into the bank) and for as long as I can remember, I’ve always helped her. I think in a way it’s a habit of hers; she’s always done it, so she continues. I do also wonder if perhaps she has some form of agoraphobia. She’s never really socialised much, and stays in the house most of the week. We used to go for walks together, but our combined aches and pains have put paid to that.

We also have to go to the garden centre outside town… I’m dreading it. I can’t pretend to enjoy wandering around looking at plants.

 

 
32 Comments

Posted by on May 24, 2012 in Every day life

 

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Invisible Illness

 

 
18 Comments

Posted by on May 24, 2012 in Every day life

 

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I Hold The Stars

Stars refuse to shine tonight,
my sky is darker than ever before,
Summer slips effortlessly into Autumn,
as I keep vigil at the window once more.

I’ve written these words a thousand times,
felt these emotions more than I’d care,
I’ve walked this room and talked to these walls,
every night since you stopped being there.

You may think it strange, you may say you’re around,
but that means so little when you’re miles away.
when feelings run cold and nights last forever,
and I attempt coping in my own way.

You smiled today, you looked into my eyes,
and I considered perhaps it may not all be lost,
with your fingers inside me and kisses so warm,
but I now freeze, as the night turns to frost.

Empty streets with nobody around,
an empty room which still holds your vibrations,
afraid to move pillows which still smell of you,
… afraid to remember our last conversations.

Am I losing you, is this all I was,
someone to let go of when it suited?
My body aches and I don’t want to think,
that I must have loved, more than you ever did.

If you could see me tonight, would it change your mind?
If I broke down in front of you, would you ever see?
If I tore myself open in a less private way,
would you ever remember why you once loved me?

I hold the stars, they’re all I have,
words don’t mean half of what I believed,
I stand at the window, replaying what you said,
and I don’t want to hear it, I don’t want to believe.

I always loved you more than the stars,
and I always needed you more than you’ll know,
I always felt more for you, than you felt for me,
and tonight, for the first time, I believe it shows.

(C) 2008

 
21 Comments

Posted by on May 23, 2012 in Poetry

 

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… and I’m feeling good.

I think the Lyrica has stabilised after the settling-down period. I’ve been taking it for two weeks now, and this morning I experienced a little pain; not enough to concern me, but it was noticeable. I’m seeing my GP in a couple of weeks, so I think I’ll have to ask for a higher dose – I’m taking 75mg twice a day, and he said there was a lot of room for raising the dose if I needed it – just to make sure I’m getting the best pain relief I can from it.

Lyrica has already been a blessing. Even on a low dose, the pain has reduced dramatically. My arms don’t ache anymore – and I can lift them above my head for the first time in years – and my thighs no longer feel like somebody’s stabbing them with a blunt spoon when I wake up. The anti-inflammatories are helping with the joint pain more than I expected; my fingers still hurt, but my wrists and ankles don’t feel weak and painful anymore.

Today’s a rest day. The sun’s shining outside, but I’m sitting on my bed, half-typing and half-watching television. The window’s wide open next to me, so I can enjoy the warmth and sunshine without having to sit on the uncomfortable bench in the garden. Yesterday, I sorted clothes to give to charity and helped around the house, clearing my extensive toiletries collection from the overcrowded bathroom and sorting things online for my mother. It’s the first time I’ve slept well on a Sunday night since I can remember – I always feel uncomfortable and alone when I come home from staying with S – and I got up early; around 8am. This morning, I got up even earlier, making a coffee at 7am and settling down to reply to emails. I slept for 11 straight hours last night, and woke up feeling properly awake and ready for the day; no nightmares, no going back to sleep, and no waking that I can remember.

It’s years since I’ve slept properly. It feels like a miracle.

Perhaps it’s all the weed I’ve been smoking recently, but I feel pretty blessed right now. Not in a religious way – I’m not about to suddenly find god – but just in the sense that I have plenty to feel good about right now. For over a decade my life has been a struggle – panic attacks, paranoia, failed relationships, lost friendships, life in the mental health system, unexplained diagnoses – and at this moment in time a lot of stuff is under control, or I’m at least trying. I never used to try; I just accepted my fate. Now… perhaps things can change.

I have S, who is the best boyfriend I’ve ever had by miles. I love him dearly, without jealousy or resentment. I trust him not to hurt me;  I’ve never trusted anybody else like that. He makes me happier than I ever thought I could feel, just by smiling at me. I’m far from a novice when it comes to relationships; I’ve been engaged, lived with partners, loved, hated and cried. I’ve had long-term relationships and short disasters. I was with the same person for four years. I know how love feels, and how relationships work… and I love S with all my heart. He’s amazing.

I have pain-relief. Finally, I have something which works. I’m no longer bed-bound for most of the week, and I’m starting to feel I could start achieving something again, after giving up entirely on any idea of a decent future.

Last year, I got my diagnosis of borderline personality disorder, after years of ruining relationships and acting in ways I didn’t understand or much like. In truth, I hated myself for lashing out and being so suspicious of everybody; I felt like an awful, obsessive person, one of those women who refuses to ever let a relationship go and boils bunnies in her spare time. Now I know why I react in that way, and I can work on fixing it. I’m already improving.

Finally, I’m really enjoying writing. Loving it. I feel like me again.
.

.

 
48 Comments

Posted by on May 22, 2012 in Every day life

 

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Depression – why opening the curtains can cause more suffering, and other advice

I originally planned to reblog this post, but after typing out a long response, WordPress decided to keep my reblog in a never-ending publishing state, then eventually wiped the entire post.

Picture this. You’re trapped beneath a safety-blanket of duvets and pillows. The room is dark and silent. All you hear is your breathing; and sometimes you’re not quite sure if you’re really alive. It feels like you’re wrapped in a big, dark spider web; you know something bad is coming, but you don’t even want to struggle or escape. Days and nights pass in a blur of half-sleep and daydreams. Time ceases to mean anything. You can’t remember when you last brushed your teeth; and it doesn’t matter. There’s no reason to.

Suddenly, somebody comes stomping in, full of cheeriness and attempts to gee you up. They flounce over to the curtains and fling them open, pulling the nice, safe duvet from you and exposing you to the harsh, painful light. Your eyes sting. You haven’t seen real daylight in a while. You feel cold and naked; the act of stripping away a blanket is, to you, a cruel and unusual punishment. The whole world can see you now, and you’re scared.  Tired, anxious, weary and scared. You just want to be left alone.

This is why pointing out lovely weather is annoying and pointless.

Depression is a cruel illness. It strips you of your ability to care or relate to anything around you. It fills your mind with emptiness – a saying I never understood until I experienced chronic depression myself – and it’s all you can do to blink without giving up.

My mother has a habit of trying to force me outside, into the garden. When she thinks I’ve spent long enough hiding in my bedroom, she’ll waltz in (usually while I’m asleep), throw the curtains wide with as much clattering and muttering as possible, and proclaim that, “you’d feel much better if you got some sunshine!”.

I don’t doubt that weather has a huge impact on depression. I certainly feel much less able to cope in the winter; making excuses about the weather being too bad to leave the house or see friends. However, depression is a very complex illness, and you wouldn’t expect a bit of sun to magically fix a broken arm. It won’t cure depression either.

There is one aspect of depression I have never been able to manipulate or control via medication; the urge to shut myself away from the world. Friendships have fallen by the wayside because there’s only so  many times you can refuse an invitation before they stop asking. Being shut away is a natural response to being depressed; withdrawing from everything and everyone can sometimes feel like the only way to save yourself. Retreat to a place you feel comfortable and secure.

As well-meaning as it may be to try to force a depressive out of their comfort zone in an attempt to cure them, what you’re really doing is tearing the safety blanket away from a very vulnerable person. You may call it tough love, but to the person you’re trying to help, you’re being cruel and unreasonable. They already feel low enough without feeling their loved ones are turning against them as well.

Depression lies. When a friend offers you advice on ways to cope, sometimes the depressed brain will twist the words to sound like an accusation; particularly in cases of borderline personality disorder. I’ve been told that bipolar can feel the same. This imagined accusation sticks with the depressed person and, over time, morphs into a huge monster they can’t possibly hope to tackle.

Going outside has long been a big problem of mine. In the past four years (give or take a year) I’ve gone from somebody who goes on regular long walks and trips to town, to an almost-recluse, travelling by taxi so I don’t have to deal with the public and wearing nondescript clothes so as not to draw attention to myself. Part of  that is due to living with chronic pain, but I know depression is at the root of my reluctance to be seen in public.

You see, I worry that everybody knows my secret. That they can somehow tell from my face I’m “one of those crazy people”. I’ve sat in taxis, listening to the driver crack jokes about our local psychiatric unit, and prayed he wouldn’t look me in the eye and realise I’m totally incapable of existing without daily medication.

I accept that trying to help somebody with depression is like fighting a losing battle. The nature of depression is that it convinces the sufferer that getting well isn’t an option. The concept of recovery doesn’t even exist; depression hides it from you.

This is why sometimes the sufferer lashes out either verbally or physically when you try to help them. It’s why they may turn their back on you and not contact you for six months when you give out a few well-meaning hints. It’s not that they don’t appreciate the advice or care about you; it’s that they’re unable to feel those emotions properly. Depression has dampened everything down, placing the depressive in a near-soundproof room. They may be able to hear you, but their lack of reaction isn’t because they’re being spiteful and ignoring you; it’s due to depression smothering them with apathy.

It’s natural to want to help those who are suffering, and mental illnesses are no different. However, unless you’re a doctor you wouldn’t try to remove a tumour; in the same sense, unless you really know what you’re talking about, offering advice to somebody entrenched in misery probably won’t work.

I’m not saying to abandon those who have depression. Far from it; there are other ways to help than mentioning medications and therapies you’ve heard about.

So, how do you help someone with depression? I don’t have the answers to that. Everyone is different, and depression is a wide-ranging illness often encompassing other diagnoses such as psychosis, paranoia, anxiety disorder, BPD, PTSD and bipolar. What works for one person might not work for another. However, along with not  wantonly opening curtains, there are some things which might help.

  • The urge to drag a depressive out of bed is probably huge. However, it’s rarely the answer. When somebody retreats it’s through a need to be alone;  whether rational or not. In the depths of a depressive episode, you shrink into yourself and ignore phone calls. Emails go unanswered. Often, the sheer stress of having to communicate wears the sufferer down so much that they retreat entirely. Obviously if you’re concerned for their safety this advice doesn’t apply; but as long as they’re not hurting themselves… sometimes they just need to get through it on their own. Keep an eye on them; don’t let them be entirely alone, but don’t pressure them either. It can be a long process to climb out of the hole.
  • It’s hard to help someone when they throw accusations in your face. Paranoia often tags along with depression, and it’s very easy to become convinced that those trying to help you are actually out to damage you somehow. My personal experience of it is that it’s almost a form of psychosis; suddenly everything and everyone are against you, and even the people who claim to love you seem to be trying to ruin everything. It’s not something you can just get control over. It’s easy to imagine enemies everywhere when you feel entirely stripped bare.
  • I shouldn’t have to say this, but having depression doesn’t make you stupid or lazy. Sadly, these views still exist. Telling somebody to “just get out of bed and join the real world” isn’t the answer; it just serves to  make the sufferer feel even less of a person than they already do. Ask someone experiencing a depressive episode if they feel like a valuable member of society; they don’t. They’re at the lowest point it’s possible to reach, and suggesting in a roundabout  way that they’re taking up space and being lazy isn’t what we need to hear.
  • On a similar note, saying “my auntie was depressed for a week and she did more exercise and it went away” doesn’t help. It’s condescending and patronising. We know our illness; we live with it every day.
  • Telling somebody on anti-depressants that you don’t believe they’re safe or work properly will get you nowhere. Those with depression need support every step of the way, not putting down for their choices. Often, deciding to take medication is the last straw of a very painful life. It can be incredibly difficult to get up enough courage to go to the doctor and explain your failings so you can be given happy pills. If they work for somebody, what’s the problem?
  • You don’t know how they feel. Even if you have depression yourself, you can’t see or feel their exact emotions; or lack of. When  you’re trapped in the depression bubble, nobody has ever felt as wretched as you do. That feeling isn’t from an excess of ego; you really do feel like nobody could ever withstand the pain and emptiness. Tell them if you empathise or relate – communicating with other sufferers can help enormously – but don’t try to convince them you know how terrible everything is.
  • Invite your depressed friends and family to parties, but don’t be surprised or disappointed if they decline. It’s not because they don’t want to see you; it’s because they don’t want to see anybody. Telling them they’d “feel better if they had a few drinks” may be well-meant, but it won’t help. They won’t feel better. They’re sick, and sickness can’t be cured by a bit of fun. Let them know you’d like them to be there but that there’s no pressure. Pressure to socialise is a very painful part of depression.
  • Don’t tell them they look tired. Seriously. Nobody needs to hear that.
 
64 Comments

Posted by on May 21, 2012 in Every day life

 

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Only Promises

We spoke as though the grass was greener
I was colder, you were meaner,
we conveniently forgot
everything we were not
supposed to be.

Miles between us now
and I can’t quite see how
we could have left us behind
you could have ever been unkind
to me.

There are no words,
only promises.

I will never
do it
again.

The grass was never greener.

(c) 2008

 
16 Comments

Posted by on May 21, 2012 in Poetry

 

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