Spent most of the night wasting time online, reading other blogs and smoking. I never sleep well the night after I leave S’s house; I miss having his arms around me when I fall asleep. I know, soft isn’t it? I’ve never liked sleeping in the same bed as somebody else – I move around a lot, kick, flail, get too hot then too cold – but sleeping with S has never been the problem it always has in the past. He just has to put his arm over my chest and dig his nose into my back, and I’m calm. I sleep like a baby.
In contrast, most of today has been spent catching up on the sleep I missed last night. I did manage to get out for a walk (admittedly, I was forced to go because tobacco supplies were running dangerously low), wander down the embankment near the marshes and actually get out on my own for once. It’s been a long time since I felt able to go for any real kind of walk, but the sun (it’s been another hot, unseasonal day) buoys me up significantly.
I paid for it, of course. Aching legs and a headache. I used to walk miles every day without thinking about it; now all I can manage is a trip to the shops. Sometimes, that’s a really depressing thought.
I’ve never been particularly into fitness, but in my childhood I ran around a lot. In my teens, I walked constantly, wandering for hours. Early twenties, I’d make myself go out every single day for long walks along the sea front. I love the freedom of being outdoors, which is strange considering my agoraphobia; you’d think I’d hate the wide-open spaces and being able to see right across the sea. I don’t though; it’s only people I can’t stand. On my own, I’m in my element. I miss having that freedom now, and feel almost cheated that it’s been taken away from me by chronic pain and fatigue. I want to try walking again – today’s attempt could have gone much worse – but I’m worried by my limitations. I still don’t know when to stop, how to conserve energy for the rest of the day.
Sometimes I worry this is all I’ll ever be able to do. That my strength is gone.
I still don’t have the guts to weigh myself. I should have done it two weeks ago, but I’ve been putting it off in case I somehow weigh more or haven’t lost anything. I’ve been controlling the binges quite well, and I’ve stopped eating in the middle of the night, and along with loosely following the Slimfast diet I think I may have lost a couple of pounds but I just don’t dare go step on those scales in case it sets off a series of events I can’t control.
- Letter to People Without Chronic Pain (kalmanrobert.wordpress.com)
- Acute and Chronic pain (viberant.net)
- Spreading the word on chronic pain and chronic illness (chronicrants.com)
- When chronic pain gets in the way of your life (otherplanscoaching.com)
- Chronic pain has a price (kevinmd.com)
- Afterlife (blessedthorn.wordpress.com)