Got me on some medication

As of Friday, I’m back on the methotrexate/folic acid. I can’t say I’m looking forward to the side-effects again, and the thought of going back to spending the weekend wrapped in a blanket, simultaneously freezing cold and boiling hot, fighting down nausea and being more fluffy-headed thinking than usual is bringing me down. There’s already been so much sickness.

But what can I do? I made the decision to take the drugs.

So why don’t you slide

Earlier, S asked if I fancied a takeaway – curry from our favourite restaurant – and I agreed. Later he went out with a friend to buy some tools. They’re working on the basement beneath our flat, as technically that’s included in the rent. It’s currently filled with the last owner’s belongings; stacks and stacks of paintings, canvas, frames, lamps, chairs, books… Bob was a hoarder, and a painter. His work’s pretty good actually. Now he’s dead and his wife is in a nursing home (she went downhill very rapidly when he died), somebody has to clear it all. The basement is pretty big, taking up most of the floor space of the house, so it’s a mammoth task.

Anyway, while they were out I got a call from S. He asked me if I wanted to go to the restaurant with his mates instead of getting a takeaway.

Did I do the right thing when I said, “it’s okay, I’m not up to it. You can go along anyway”?

I wasn’t lying. I’m truly not up to it. I tried going for a short walk earlier, and by the time I returned, I was struggling to breathe and sweating like crazy. It’s been so long since I’ve had ‘proper’ exercise. That walk used to take me five minutes. Today, it took thirty.

Straight away S’s tone changed; the first time I’ve ever really heard it do so. He said, “oh. Okay. But we were going to have a takeaway.”

I shrugged him off, “it’s fine, I’m really, really not up to it. We can do it another time”.

He agreed, but… he didn’t sound happy. It’s only when I ended the call that I began to feel that familiar twinge of panic.

Image

Oh god. Oh god oh god oh god you fucking idiot oh god oh god.

I have never once done something (to my knowledge, anyway) to make S angry or disappointed. Unlike my relationship with O, I’ve managed to keep my irrational emotions in check; at least until I’m alone. I’m so determined not to fuck this up. I know it’s classic BPD to say, “oh, I love him so much, he’s my everything, I want to be with him forever” but all that’s got me in the past is a string of disastrous relationships and far too much bitterness. I almost have my head around that now, and the medication certainly helps me keep the more extreme aspects of my behavior in check. So while I know that these feeling might be BPD tricking me and that mental illness has a habit of making me cling to somebody like fuck… I want to believe this is real. I’m pretty sure I know, deep down, I love S with all my heart; how could I not? He’s the only man who has never condescended me. Who has never given me reason to suspect him of wrongdoing. The only man who I’ve felt comfortable enough with to let the mask slip.

I know I love him.

And now I’m scared.

scared-woman

So what did I do? I went straight for the Tramadol.

I’m now sitting at the kitchen table, trying and failing to calm myself with a joint. The urge to crawl into bed and hide under the duvet is overwhelming.

“Well, I had no confidence in my ability to dent another human’s life”

Sometimes it’s impossible to even think of a title to a post, let alone which words to use. Being stoned doesn’t help, but it’s the only way I’ve been able to cope today; it was either dope, or masses of co-codamol and a bout of self-harm. I figured weed was the safest option.

Where to begin? It’s past 2am, and I’m still furious from the orthopaedics appointment this morning. As usual, nothing was achieved – my consultant wasn’t even there, and I saw a junior doctor instead, who couldn’t do anything except repeat what I’d already been told at my previous appointment – and I’m furious. I’ve had enough. This officially isn’t fair, and I’ve stood back and let this happen over and over because I haven’t wanted to cause any problems.

Well, fuck that. I’ve been in constant agonising pain for over eighteen months. I can’t walk properly and need a stick most of the time. Ice? I can’t leave the flat if it’s even slightly icy, because I have no balance. I can’t sleep. I can’t exercise. It’s all I can think about, and even strong painkillers (which I’m doing my best to avoid, for obvious reasons) only take the edge off slightly. I’d gladly take back the colocystitis pain over the constant needles and cramps in my foot.

01pain

www.thechinchilla.com

I got home, and cried. Smoked a joint and ranted to myself for a while. Mentally calculated everything in the flat I could possibly hurt myself with. Considered making myself sick. Ate half an egg sandwich then threw it out. As it is, I haven’t eaten since; I’m hungry, but the gnawing feeling in my stomach is comforting. It’s… control.

I feel very out of control.

Since S came home from work, he’s been cheering me up immensely; so I’m coping okay. I haven’t taken any codeine, or hurt myself. Oh, the urge was there – I thought about it the whole taxi ride home – but you see… if I hurt myself, I hurt S too. It’s strange for me to feel that way, because in past relationships I’ve never truly accepted that my tendency to damage myself could have any effect on my boyfriend. It wasn’t that I was being selfish, it’s just… well, I had no confidence in my ability to dent another human’s life.

I don’t want to hurt S. He’s my world. I know I can’t care about myself, but I adore S. I assume that much is obvious from my past posts.

adore

danielleflanders.blogspot.com

I’ve been thinking a lot about where I go from here, and I believe my only option is to put in a formal complaint of medical negligence. As much as I’m tired of fights… I refuse to go on being treated this way. From the first time I saw a consultant for PCOS, right through to today, I’ve had sub-standard medical treatment and every single condition I have has been made worse by lack of action and misdiagnosis. I don’t think any of this is fair, and I’ve got to stand  up for myself at some point.

I confess

The drugs just aren’t doing it for me,
chemical sleep has lost its appeal
and I confess, I considered tonight
that it might be easier just not to feel.

To slip away, to take a bow,
Admit defeat and fall from my grace
and would you miss me, would you notice;
how long would it take to forget my face?

You forgot me once, you can do it again,
after all, this is only a release
breaking free from the prison we built together
in the hope, of maybe, one night of peace.

I confess, this is serious,
and if I had the strength I would leave tonight
I wish I was brave, that I wouldn’t miss you
that this time I could really give up the fight.

An empty bottle in front of me,
and pills I know I’ll never take
just further proof of my personal failings
evidence of the depression I could never shake.

Another scar to my collection,
a canvas I paint to remind me of you
to prove this reality was never a nightmare
but a waking hell, which I’m still going through.

I confess, it would be so easy,
Just a slip of the hand, just one step too far
but I’m not brave, I feel too afraid
to let myself go, to reopen these scars.

Yet I fantasise of how easy it would be,
for you to live your life without me there
I confess I think of setting you free
sometimes it’s the only way that ever seems fair.

If I left today, would you notice?
Would you realise, I did this for you?
If I slipped away past an exit sign,
would you see it as failure, or something I needed to do?

I try to remember every word you ever said,
the times you loved me, the times you were sweet
I confess, I want to forget
to make this easier for me to leave.

But how can I go when you hold me like that;
when you whisper so quietly only I can hear?
I confess, you keep me from dying,
from collapsing under the weight of my fears.

(c)

“Suicide” is a word I don’t like typing. It’s such a final solution, and the word itself makes me feel uncomfortable about the actions I’ve taken in the past. I may occasionally mention my flirts with causing my own death, but I try not to go into much detail because, in truth, I’m ashamed.

I’m ashamed to know I even tried, mostly over such trivial things. New colleges and threats of break-ups. Arguments with my mother. They seem such petty reasons but back then I couldn’t judge whether an incident was serious or minor, and everything felt like a horrific attack on everything I am. The panic and psychosis (for there was psychosis; hallucinations and imagined conversations) drove me into a ball of fear and confusion and, somehow, I decided that suicide was the only logical answer to a world of horror. 

Last week, a man lay down on the train tracks between my house and Z’s, and killed himself. I heard the sirens and saw sketchy details appear on Facebook, but I still can’t let myself accept that somebody was in so much torment that they felt the only way to solve it was to climb over the barriers as traffic waited at the crossing, and wait for the train to hit; somebody just a couple of roads away from where I was sitting was going through something most people never – thankfully – have to experience.

I find myself wondering what he was like; why he felt he had to take that step, and do something so damn final. I wish I’d had the chance to know him, somehow.

Unspoken

Sitting together and so far apart,
a thousand words unsaid and truths unspoken,
I never felt more alone, more out of place,
as I do tonight,
sitting by your side.

.
A bottle in my hand and a cigarette in yours,
I open my mouth but no words will form,
it all seems so trivial when I feel this broken,
when you’re sitting so close to me,
yet not here at all.

(c)

Writing about 2008 is more difficult than I ever imagined. On one hand, I almost feel uncomfortable writing about my past relationships now that I’ve been with S for eighteen months; I know he probably wouldn’t mind, but it must be weird for him to know I’m writing about my exes. On the other hand, it’s only now that I can see just how low I sunk; I knew I was falling apart but what I didn’t realise is that I’d totally cracked long before it got to this point. I can see that now. It’s difficult to think about. I acted in ways I’m not proud of and damaged my body god knows how much with handfuls of amitriptyline, tramadol, diazepam, co-codamol, small antidepressant overdoses to get me through the night in a dazed drug-fuelled stupor instead of having to deal with the reality of everything in my life going incredibly wrong. 

O and I… we stopped speaking one day. Conversation turned to bitter arguments and shouting matches. Slammed doors and a smashed laptop. Midnight chases down the street; it was always me doing the running. I just couldn’t face any of it. 

I remember sitting on his swivel office chair, gulping from a bottle of cheap peach schnapps and watching him smoke cigarette after cigarette, sitting on his bed and brooding. He threw me out that night. 

Of course, we got back together. We did a lot of getting back together. 

Maybe I’m just like my father: of psychiatrists and psychotherapy

Psychotherapy is a general term referring to therapeutic interaction or treatment contracted between a trained professional and a client, patient, family, couple, or group. The problems addressed are psychological in nature and of no specific kind or degree, but rather depend on the specialty of the practitioner.

Psychotherapy aims to increase the individual’s sense of his/her own well-being. Psychotherapists employ a range of techniques based on experiential relationship building, dialogue, communication and behavior change that are designed to improve the mental health of a client” – Wikipedia

woman-in-therapy-session

In my experience, most mental health centres and hospitals look the same. Red-brick buildings with NHS-standard signs directing patients to different departments, a row or two of (usually blue) chairs in a soulless waiting room, and old copies of Lancashire Life stacked on a low table if you’re lucky. Mazes of corridors and doors which are always kept locked. A buzzer or bell to gain entry or allow exit. Sometimes the paint on the walls differs, but it’s usually a palette of beige, pastel green or pastel yellow. “Calming” colours.

They inevitably make me think of the contents of an unwell baby’s nappy.

Our local mental health centre is, handily, in my town. It was recently refurbished and is now very different from the brief glimpses I got when I was being hauled – twice – to a private room on suicide watch in my teens. Back then the entrance led to a huge staircase which dominated the entire hallway of what used to be a beautiful old building but which has now been added to so much that it’s lost most of its character. Now, the staircase has been remodeled and everything’s been painted an off-white. There’s lots of glass and bright posters. It almost feels like a primary school, except you’re always aware that there are people upstairs, being watched 24 hours a day in case they hurt themselves.

waitingroom

I sat with my mother, and waited. As my legal appointee, she has a right to accompany me to any appointments and while I usually try to wriggle out of it… sometimes I need her. My fear of going back into the mental health system after over a decade of let-downs and damage inevitably took over, and I know I wouldn’t have coped on my own. As it was, I had a small panic attack when I realised the psychiatrist was stuck in traffic and would be late; if I ever needed control, it’s when I’m about to open up my fucked-up heart to a complete stranger.

I was mildly surprised that the psychiatrist I saw was a young woman. I’ve become used to stuffy old men in shirt and tie, peering at me over their glasses and shrugging off all my concerns as being “down to my age”.

Another blue chair. Another desk, another patient file. I’ve done this so many times that I may as well just record what’s said and play it at the inevitable next appointment a few years later. You see, I have a problem sticking with things, and I’ve already spoken about how I find it almost impossible to be honest when faced with authority. When everything becomes too much I cave in and accept professional help, but I either pretend nothing’s wrong, or never go back. It’s as though I want to help myself, but the process is too frightening. Therapy means a loss of control and a need to be painfully honest; two things I find almost impossible to deal with.

I explained to the psychiatrist that I felt I was too old to still be dealing with all this, and that the mental health system has let me down a lot in the past. Picked at my jeans and stared at the wall as I detailed everything; the panic attacks, obsessions, paranoia, the total lack of self-esteem, the drugs, the painkiller addiction, the times in my teens when I relied on stolen bottles of gin to get me through the night, the self-harm, the bulimia. As I spoke, I realised that honesty was never going to come easy; although I was forcing the words out with all my strength, I still held back. However, my stumbling confessions were enough to confirm the diagnosis of BPD, and to earn me a referral for psychotherapy.

chickentherapyhut

Specifically, I’m on the 18-week waiting list for CAT Therapy.

Cognitive Analytic Therapy (CAT) is a form of psychological therapy initially developed in the United Kingdom by Anthony Ryle. This time-limited therapy was developed in the context of the UK’s National Health Service with the aim of providing effective and affordable psychological treatment which could be realistically provided in a resource constrained public health system. It is distinctive due to its intensive use of reformulation, its integration of cognitive and analytic practice and its collaborative nature, involving the patient very actively in their treatment.

The CAT practitioner aims to work with the patient to identify procedural sequences; chains of events, thoughts, emotions and motivations that explain how a target problem (for example self-harm) is established and maintained. In addition to the procedural sequence model, a second distinguishing feature of CAT is the use of reciprocal roles (RRs). These identify problems as occurring between people and not within the patient. RRs may be set up in early life and then be replayed in later life; for example someone who as a child felt neglected by parents perceived as abandoning might be vulnerable to feelings of abandonment in later life (or indeed neglect themselves).

It all sounds like much of a muchness, and initially I was reluctant to even consider it. Most experiences I read online leaned very much towards the negative, and the idea of writing a “goodbye” letter to my therapist is an odd one; I usually leave therapy sessions by simply walking out and never coming back.

However, I’ve given it a lot of consideration over the past few days. Knowing CAT is a “cheap” therapy is a concern; does that make me a snob? I’ve decided that a minimum of eighteen weeks is a long time to think it through, and I do have the safety net of being able to leave whenever I want; I’m not being forced into psychotherapy. It’s my choice, and I think at least giving it a go is the right decision.

I think.

I hope.

_______________________________________

Attached at the hip – another oldie

Stars hung low in the sky tonight
Suspended by threads less fragile than ours
Street lights flicker and tobacco burns
A single light glowing in the dark.

The moon covered by a cloud
But hung by a rope, stronger than anything we could have made
Skin deep promises count for so little
On these nights by the windowpane.

A burned out joint in the gutter
A feeling of being anything but high.
Standing smaller in the dark than I’ve ever felt
In the dark, beneath the night sky.

The wind chills my fingers as I watch the road
Waiting for cars, but nobody comes
Just flickering night lights to pave my way
An illumination on all that I’ve done.

Lighting the shame, the guilt and the doubt
A spotlight upon my every move
Why can’t they see, this was only about me?
This was never about my feelings for you.

Stars hang low above my head
On threads made of promises, kisses and sighs
Threads hold us together, attached at the hip
Built of deception, coldness, heartbreak and lies.

(c) 2008