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My bed feels larger than when I was small

 

I’m tired of struggling through every day. Of pushing and pulling and forcing myself to at least seem okay. I’m tired of speaking and having the words come out jumbled before they can even leave my mouth. Of sleeping only when beyond exhaustion. Of making excuses. Of seeing the sunrise every single morning, having been awake all night. Of not being able to find a single bit of beauty in it.

Today, I broke all my personal promises and posted my feelings on Facebook. Oh, not the big stuff – that’s for here only – but I went into far more detail than I’ve ever felt comfortable with, and I’m still not comfortable with it now. I only did it because I can’t take unrealistic expectations anymore; I have never, ever been able to cope with being expected to act a certain way and, truthfully, I’m sick of pretending.

I was pulling myself out of it, with the help of antidepressants which have been proven to work for me. I was trying really goddamn hard, and I was almost there. I’d started eating normally again, and having showers. Things seemed to be on the up emotionally, even if they weren’t so great physically.

Then… just one little thing. That’s all it takes.

I don’t even know what that little thing was. All I know is I’m sitting on the sofa after leaving S in bed. I cried all day. I realised I just can’t take this. Everything. The pain. The sickness. The tiredness. Any of it.

 

world

I’ve been vomiting again, and the conclusion my mother and I came to is that it’s stress. Truthfully, I accepted this explanation because the idea of facing just one more doctor is too much to bear. I’ve thought about it throughout the day though, and I realise it’s probably true; even on days when I don’t feel like a total emotional wreck, I’m still terrified of what will become of me, and it’s like a ball of pure acid in my stomach to even consider the future.

Can I even see a future for myself?

Not really.

I’m relying on those closest to me – my mother, S, and a couple of people I’ve come to call friends – to keep me afloat, because if left to my own devices I begin to sink almost instantly. I can no longer talk to Z about any of this; it became apparent a while ago that we’re probably never going to be on the same page when it comes to life.

Just like last time, the vomiting has kicked off feelings I’d rather not have; feelings of calorie counting and tape measures. Truthfully I hardly need to worry about such things since eating has become incredibly difficult with the constant nausea and risk of sudden projectile sickness, but something inside decided to worry about it anyway. I’ve lost a lot of weight without even trying over the past few months, and you’d think I’d be ecstatic but instead I almost feel cheated because I didn’t do it myself. So, yet again, I grab for control.

I don’t even believe my own lies about having control anymore. I know nothing I do gives me the slightest safety.

 

 
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Posted by on May 10, 2013 in Every day life

 

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Slight return

I sit. Read the comments on my last few posts. Sit a little longer. Sleep. Play computer games. Sit some more. Smoke.

Honestly? The energy isn’t there; and it frustrates me because there are so many excellent comments which deserve a well thought-out reply. So I sit, and read, and make myself forget because right now I can’t be doing with worrying over yet another thing I can’t cope with.

Food? I’m getting there, slowly. My mother’s noticed my eating habits – she screamed at me over them, in fact – and although it’s utterly terrifying I’m managing to make myself eat. It’s not easy. It’s one of the hardest things I’ve ever had to do, because I do need to lose weight - genuinely -  and I’m shit-scared of bloating and the idea of calories sloshing around in my stomach when I’ve come this far. I’ve been told in the past to worry about losing weight sensibly when my ED’s are under control, but what nobody seems to understand is that my ED’s are never under control where weight loss of any kind is concerned.

S is being incredibly supportive, in his own way. I feel safe eating around him, and he doesn’t push me. My mother… she thinks she can shout at me until I eat again.

 

I have an appointment at the biomechanics clinic in the morning. Friday, I’m taking my incredibly phobic mother to the dentist. And some time in the next couple of weeks I’m moving in with S. There’s 27 years of shit to sort through before I can even consider fitting it all in a van. Most has to go to charity. In a way I’m glad; I want shut of this life now. I’ve been stagnating for far too long in a seemingly endless cycle of bad boyfriends and ruined friendships, all while festering in this house and wasting my life away. I want to start again.

 
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Posted by on September 6, 2012 in Every day life

 

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Not that I need proof.

3.30am. We were outside. Me sitting on a slightly damp mesh chair, S standing; smoking and drinking white wine.

S kissed me on the forehead.

Me: “If I had a problem, and felt weird talking to you about that problem, would that be silly?“.

 

So I told him. Confessed I’d lied last weekend about feeling ill, and in fact I was trying my best not to eat. Explained how it’s all about control and, haltingly, listed the reasons why I’m grabbing onto a past ED to cope.

He didn’t ask why.

He didn’t tell me to stop.

And he didn’t get angry.

He just kissed the top of my head and rubbed my shoulder.

“How are we going to fix this?”

 
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Posted by on August 28, 2012 in Every day life

 

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None of us are free

Listening to: Frou Frou Foxes in Midsummer Fires by Cocteau Twins.

It’s 5.08am. My stomach is empty and the diet Dr Pepper is making four days worth of heartburn worse. It’s become a toss-up between stomach pain or curbing my appetite, and so far the pain seems like the most sensible option.

See, restricting does strange things to your mind, especially when it comes to rational decisions. I may not have much confidence in my abilities or even respect myself much, but I know I’m not a stupid woman. I can dissect situations, and can think logically. Those have always been my greatest strengths, and though I’d never go so far as to say I’m proud – I don’t think I know how it feels to be proud of myself – it does offer me some comfort to know I at least have something I can do well. Right now though… logic simply doesn’t come into it.

I don’t know how long I’ve been avoiding food for now. Two weeks? It feels longer, especially when every breath brings a mouthful of acid up my throat. Strangely, I’m not dreaming of cake and chocolate. If anything, I’m just not hungry anymore. Or rather I am, but it isn’t registering as anything other than a pleasant sensation of emptiness.  This is what worries me – and worrying about my eating habits is a new feeling – because I recognise that pleasure. That feeling of being on a higher plane because your stomach is empty. Pure. Unspoiled. The only uncomplicated thing in your life. The only thing you have complete control over.

I don’t understand why I can’t bring myself to speak to S about all this. I still haven’t said a single word to him, even though I promised to when the anxiety was kicking off. I know it sounds like an excuse, but there honestly hasn’t been a suitable time to bring it up. “Hey by the way, you know how I used to be anorexic? And bulimic? Well, I’m aiming for like, 300 calories a day and pretending it’s the answer to all my problems. Want a brew?” doesn’t exactly go down well when everything between us is perfect and happy. I don’t want to taint the relationship by bringing up my failings.

I’m beginning to think I’ll never escape from ED. Never.

 
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Posted by on August 24, 2012 in Every day life

 

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Hole

Puppet strings are bearing down on me
Trying to control the enemy inside me
Choking me
Destroying me.

There’s a hole in my soul
Which I filled with everything
but love.

(c) 2001

I lost my virginity in 2001. I was fifteen and my boyfriend – soon to be fiancé – was eight years older. He lived in a council-owned property with a nerdy Lloyd Grossman lookalike, at the end of a long, narrow street in Liverpool. Over time, he would move to my hometown to be closer to me. We were together for a couple of years, and there’s a reason why I have rarely mentioned him; simply because the thought of his face gives me panic attacks. 

During that time I was still struggling with anorexia. I’d gained a little weight, but my BMI was still too low. However, I’d walked away from the mental health system (as I’ve done many times) because all they could offer were pills and force-feeding. I was vulnerable – much younger than my fifteen years both physically and emotionally – and when a man eight years my senior paid attention to me… I jumped straight in. Didn’t give a damn about consequences or morals. I jumped in feet first and, by the time the relationship ended a couple of years later, I’d grown up immensely. I knew what it was like to be hit by a man. To be sworn at and locked in his flat. When he chased me down the road, hurling a full can of Coke at my head and pulling my hair until I hit the ground… I stayed. I stayed because I was desperate to be loved. 

We ended with his boot in my belly and a footprint on my face. Police and concerned strangers. My mobile smashed, shattered across the road. Black eyes and swollen fingers. My mother and auntie taking me to the police station to give a statement. And, finally, an injunction. A letter stating he couldn’t come within ten feet of me or contact me in any way. 

Still. He inspired poetry. 

I’ll write about him one day.

 

Posted for dVerse Poets Pub:

D’verse Poets Pub is a place for poets and writers to gather to celebrate poetry. We are many voices, but one song. Our goal is to celebrate; poets, verse & the difference it can make in the world. To discover poetry’s many facets and revel in it’s beauty, even when ugly at times.

 
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Posted by on August 19, 2012 in Every day life

 

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When the past gives me no comfort

Despite my attempts at being entirely honest and bare in this blog, I do hold back. I assume everybody does, to some extent, even in their most secret of diaries. You see, twenty seven years of life is a lot to fit into just over a year’s worth of writing.

At first, I thought running out of things to say and confessions to admit would happen quite quickly. After all, I haven’t lived for that long; most still seem to consider me a child, barely out of my teens. It seems that even after you grow up and become an adult, there will always be somebody older ready to condescend your problems by mentioning how much more experienced they are. However, thousands of words later, I’m beginning to realise I can’t possibly tell my story in such a short time and, if anything, I’m only just admitting to the tip of the iceberg.

Something I’ve learned about writing such a personal blog – which involves sensitive subjects – is that I have to be feeling in the right frame of mind to speak about certain things. Sometimes I have to be angry; I write best about self-harm when I’m furious. Others, I have to be bordering on falling back into the depression pit. Some things… I am never in the right frame of mind.

 

Like tonight. I would much rather curl up in a ball on my bed and smoke dope and watch E.R until the sun comes up, than write about all the anxiety which has been plaguing me. I’d much prefer distracting myself with pointless games than admitting to finding it really fucking hard not starving myself every time I try to lose just a little weight.  And I’m forcing myself to write because I know that if I don’t, I’ll keep doing it. If I don’t have to hold myself accountable, then what’s the harm in letting myself cut a few hundred calories a day, until I’m only eating half an apple and two carrot sticks? At least then less people would judge me. I wouldn’t have to worry about not being taken seriously anymore, because when I was thin… I felt better. I just felt better. More confident. People listened to me more. I wasn’t just a fat loser with a walking stick and too many piercings.

I’m tired, but I don’t want to sleep. I also don’t want to talk about the voices.

They’re not voices; not really. They’re more like obtrusive thoughts which feel like they come from a different brain. They barge in with suggestions and hints, and are impossible to shut up once they get going. Until a few years ago I believed they were entirely valid thoughts, and acted on them. After years of fucking up and putting myself in dangerous situations… I learned – through lots of self-therapy and even more medication – that they’re not my real thoughts. That’s all well and good, but it doesn’t mean I can ignore them. They shout. Loudly. Demand my attention. Grab onto my brain stem and refuse to let go.

I wish I could explain the things they say, but it’s difficult to put into words. It’s bitter and spiteful stuff; reminders of my failings and every single time I said something wrong. They’re the ones who say that everybody in a room is looking at me, and that everybody I know is just pretending to like me out of pity. When I’m holding the lit cigarette in my hand and feeling helpless, they’re the ones who are shouting at me to press it into my arm. They’re the ones who twisted everything; who convinced me that I had enemies in friends and that others were out to hurt me. They made it all sound so real, and they still do. I just know they’re not a part of me now. Not a healthy part anyway.

I don’t know what I’m trying to say here. That I’m tired and need sleep, probably.

 
32 Comments

Posted by on August 9, 2012 in Every day life

 

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Don’t blame your daughter, that’s just sentimental

I was angry earlier – I suppose it showed – and I’m starting to feel a little guilty for lashing out verbally on such a time-worn subject. It’s a story which has been done to death over the years, and I’ve cried more tears over my mother’s control than anything else in my life. Although I didn’t cry this time, I wanted to; the only thing holding me back was a sense of pride in believing I was right, and not wanting to show weakness to her while she had the emotional upper hand.

Understand this; I love my mother. I worry about her constantly – her physical health, her moods, her depressions, the way she rarely eats – and I’d fall apart if anything happened to her. Although I hated her at times throughout my teens, I gradually learned that not everything she did was to spite me; over the years, my mother has opened up about her abusive relationship with my father, her brother dying when he was eight years old, her father dying of cancer when she was fifteen. She’s had a turbulent life – like mother like daughter, I suppose – and the more I get to know her, the easier it is to see that I’ve learned a lot of my behaviour from her, such as my ridiculous attitude to food. She’s obviously struggled with a lot of stress and drama, and sometimes I see flashes of myself in the way she rants and raves; flashes of BPD.

I suppose we’re too alike in many ways. Both prone to sulking and unjustified anger. Both trying to control situations; she tries to control me, I try to control myself. Both living with chronic pain. Both dealing with the stress of illness. Both knowing that men are sometimes unspeakably cruel.

I’ve spent so much of my life feeling inferior to her, feeling pushed out of the family and wrapped in cotton wool. Been the baby of the family for too long. I’ve watched my brother go off to be a train driver. Seen my sisters become managers and childcarers. Felt left behind as they buy houses and settle into their lives. My sister (E) ran away from home in her teens and stayed in a B&B, because she couldn’t cope with the controlling atmosphere in the house… leaving me to receive it all.

In a way, I wish I could hate her. It would be much easier to think she’s just a cruel woman; but she isn’t. She’s ill, she’s ill in the ways I am, but she will never admit to it. I’ve tried; she admits to having depression and I know she’s been on antidepressants in the past, but I know she struggles more than she ever shows.

I don’t know how I feel about moving into a flat with S – possibly next month – because I know she relies on me. As a child, I thought her demands for cups of tea were akin to slave labour; now I know it was because she couldn’t handle the kettle with arthritic fingers in the morning. I thought her hatred of my boyfriends was some sort of jealousy, when she turned out to be right about them every time.

She hurts me, though. Her little comments about my weight – hinting I shouldn’t be eating so much – and piercings/tattoos get me down. Her need to know every single thing about my life is tiring, especially when there’s so much I could never tell her. Her control over my finances… it’s destroyed my trust in her, because I know she doesn’t trust me. I’ve tried my best to be the daughter she wants me to be, but I know deep down I’ll never achieve that because it just isn’t me. I have piercings which she hates. I have ink she loathes. I hang around with people she can’t stand. I wear clothes she may not always approve of. I take risks and make decisions without her input… and that won’t change, because it’s taken most of my life for me to begin to realise who I am. I’ll never be what she wants.

 
40 Comments

Posted by on June 1, 2012 in Every day life

 

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Tomorrow never comes.

Woke at 5.30am, reeking of fake tan and feeling wide-awake. A few hours later, I’m sitting up in bed, half-watching the first season of ER and trying to pick dried wax out of my eyebrows and off my face. S is taking me for a meal tonight at our favourite Indian restaurant, so I’m trying to remove all ten tonnes of body hair before he sees me; having polycystic ovaries is a nightmare sometimes. I’ve been managing the symptoms quite well for the past few years – losing five dress sizes almost overnight in hospital helped – but it’s slowly getting worse again.

My diet is failing miserably. I lost 6lbs, then started binging again. Not badly; just enough to halt any progress in its tracks. I’ve been avoiding the Slim-Fast tins in favour of bowls of cereal and toast, convincing myself I’ll get back on track tomorrow.

It’s never tomorrow. I’d do well to remember that.

After the stress of yesterday, I slept like a baby last night. Drifted off around 9pm and slept right through. I’m not even sure I can remember dreaming – which is incredibly rare – and when I woke, I didn’t feel the usual urge to snuggle under the covers and put off beginning the day. Rolled a joint, made a coffee, checked my emails and played some Boggle, all before 7am. Considering I’d been getting up around 3 in the afternoon and going to bed when the sun rose… I think I’m doing well. There’s no doubt it has to be down to the Lyrica; nothing else has changed.

When we bumped into S yesterday, my mother chatted to him about how Lyrica’s worked for me:

“It’s a miracle, isn’t it?”

S gave me a hug and looked me up and down:

“It’s great, it’s fantastic seeing her so bouncy and happy again”

 
29 Comments

Posted by on May 30, 2012 in Every day life

 

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I said “see, too beautiful to let you sleep”

“It’s vital to remember who you really are. It’s very important. It isn’t a good idea to rely on other people or things to do it for you, you see. They always get it wrong.”
From Sourcery by Terry Pratchett

According to BBC weather, it’s 21° C and cloudy outside. Sitting in my bedroom with my window flung wide open, sweating like a pig and hating the sun… I beg to differ. I went outside earlier for a cigarette, and after a couple of minutes I could already feel my shoulders and face burning in the heat. I know a lot of my readers are from the USA, and I don’t know if news of the UK’s weather has reached that far but… it’s hot. Very hot. Yesterday was showing 30° outside, and it’s much the same today apart from a breeze coming off the coast.

Don’t get me wrong; I love summer. I love the green trees and being able to wear sandals. I love how the sun brings out my freckles and gives my normally grey face some colour. I don’t tan – natural gingers just burn, and burn badly – but the sun clears my skin up and makes me look healthy; something which doesn’t happen often.

Of course, sunshine also helps with pain; a lot. I love the first warm day of the year, knowing my muscles and joints will calm down for a while and give me some respite. However there’s such a thing as too warm, and this is it. Lyrica and Celebrex don’t seem able to cope with the neck muscle spasms which too much heat brings; last night I was in agony, moody and sweaty and trying to move my head to the side with little success. My head pounded, and my jaw muscles ached every time I opened my mouth. This is the bad side of summer.

So, I’m holed up in my bedroom, drinking cold coffee and wasting time on the internet. My brain feels like it’s melted; fibro-fog ahoy.

I feel guilty. I’ve been invited to a going-away party for somebody I know online, through a local forum. We were supposed to be meeting at 1pm outside an ice-cream parlour in town, but as much as I’d like to, the combination of unexpected pain and fatigue (and general anxiety) have put paid to any plans. I’m too nervous. Too shy. Too self-aware of my weight and looks. Too hot. Too achey.

I could have admitted to that, but I lied. As I always do in these situations. I don’t know why I can’t just admit that I’m not up to socialising; it’s hardly the biggest crime in the world. I just feel ashamed, I suppose. I don’t want to seem weak. I don’t want to be the always-sickly one who never comes out because I’m constantly unwell. I just want to be normal sometimes, and refuse for normal reasons.

I feel so uncomfortable and restless today. Nothing can hold my attention. Sleep is tempting, but I don’t want to ruin the almost-normal sleeping pattern I’ve created since starting Lyrica. I have the first three seasons of ER to watch, but I don’t want to stare at the TV screen. I don’t want to read. I’m happy, but just feeling physically drained by the heat.

As always, the weekend was glorious. I don’t usually write much about my weekends with S; regular readers know we spend a lot of time doing the same things – playing computer games, cooking, reading together – and I don’t want to bore anybody with my relationship. However, this weekend was different. Firstly, I felt something I’ve never felt before. I don’t know what to call it – it’s not love, because I already feel that for S – and I don’t even know how to describe it.

We were lying together on his bed, naked and chatting about little things. His arm was draped over my waist, and our heads were touching, our faces almost totally squashed into each other. We do this a lot, usually after sex; S has never been one for just turning over and falling asleep or getting up to do something else. After sex, he holds me. Every single time. He cuddles me close and we talk. It’s fantastic; something I’ve never had before, and something I was convinced didn’t actually happen outside of Hollywood.

It was like a welling up in my chest. An explosion deep inside me, somewhere I never knew existed. As S’s hand stroked my back, something in me threw out this emotion, daring me to feel it. For the first time in my life, I let the emotion in. I let myself feel something otherwordly for somebody else. I refused to doubt it; and finally spoke my feelings out loud after months of keeping my mouth shut for fear of rejection.

“This may be soft as hell, but you’re the one person I can see spending the rest of my life with. Who I’d want to spend the rest of my life with”.

S settled his head on my shoulder, and I could feel his smile against my skin as he spoke to me:

“You’ll just have to wait ’til I ask you formally, then”.

 
44 Comments

Posted by on May 28, 2012 in Every day life

 

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Accept

Often when I talk about myself, I feel eerily detatched from the situations and experiences I’m describing. I used to think it was similar to watching a movie; I was the lead star, but the narrator was somebody else entirely and the scripts never quite matched up. Now I realise it feels more like a form of denial – if I don’t accept something could be the truth, it can’t hurt me – and I’m beginning to think it’s not doing me any good to be so removed from myself.

All my life, I have called myself a liar. Sometimes with good reason – I lied with abundance in my teens to try to fit in – but often there’s no lies being told, other than the ones I tell myself to stay safe and ignorant. Denial has long been a part of my life; so long that it’s a natural emotion for me, one which never used to carry weight or worry me but which now makes me wonder if this dissociation could be the reason why I find it so difficult to accept things in life and move on.

When speaking to doctors and counsellors about my eating disorders in the past, I have often sat in the chair and wondered if I’m not exaggerating to get attention. I used to convince myself that my binge/purge cycle wasn’t really bulimia, and that starving myself had nothing to do with anorexia. I could use the words with ease to describe my eating habits, but there would always be a part of me shouting in the background, accusing myself of lying. I thought if I only stuck my fingers down my throat a few times a week, or didn’t completely empty my stomach, it wasn’t bulimia. It was just a bad habit, like smoking. Certainly not a mental health problem. It was always he same with self-harm; other people self-mutilated, I simply made half-arsed scratches and scrapes to make myself more miserable.

It’s difficult to explain how I could think that my habit of burning my arms and legs with heated-up bits of metal, scissors, hair clips and cigarettes could just be a way of depressing myself so I could be the morbid, cool, damaged teenage girl everyone secretly admires. Above everything else, I’ve never sought attention; I dislike it intensely, especially when it applies to the crazier side of me. I just want to be left alone, not put in the spotlight.

The point of all this navel-gazing is I’ve realised that I’m nowhere near being able to accept I have arthritis. It’s been over a week since my diagnosis, and although it’s probably normal to be in some sort of denial and that alone certainly wouldn’t be cause for concern, what worries me is that little voice inside my head, telling me I’m making it all up. That I’ve misunderstood Dr B, or invented it all as a reason for the pain. It’s ridiculous, really; I have proof from the referral letter, and I’m sure my GP will tell me the same things when I see him in a couple of weeks. I have a bruise in the crook of my arm from the blood test needle.

I don’t know what the problem is. It’s not like it’s a death sentence, after all. Yes, I will be in pain for the rest of my life – barring any medical miracles – but did I really expect anything different?

 
10 Comments

Posted by on April 19, 2012 in Every day life

 

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